It’s only by coming together that we can push EB up the agenda and make sure everyone living with it, day-in and day-out, gets the treatment, care and support they need.

Together, we can shine a spotlight on the desperate struggle many people living with epidermolysis bullosa (EB) face to get basic care and support – and called loudly and clearly for investment to improve it.

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Before you go, would you consider supporting us?

Your donation can transform lives

Fundraising and donations are vital to allow us to continue to provide hope to our patients by funding research and support to them in dealing with the many challenges of EB.