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News and Stories: skin

International Women’s Day

Written by Cheryl Gunning on March 3rd 2020

We want to take time out to celebrate all the incredible women involved in fighting for those living with EB.


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Tags: epidermolysis bullosa, International Womens Day, Patient Support, Patients' Stories, Rare disease, Research, skin
Categories: Advocacy, Family Support, News, Research

What is EB?

Written by Cheryl Gunning on July 3rd 2019

(Infographic created by FIENDISH.com)

Epidermolysis Bullosa (EB) is a group of rare genetic skin conditions, which is characterised by extremely fragile skin and recurrent blister formation, resulting from minor mechanical friction or trauma.

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Tags: epidermolysis bullosa, Rare disease, skin
Categories: Advocacy, News

Recent Posts

  • We launched our EB Expert Panel to help shape our support and research priorities
  • Claudia Scanlon and Johnny Sexton join Ryan Tubridy on emotional Late Late Show interview
  • Newsletter Spring Edition
  • People living with EB need mental health support
  • The Government has been urged to ensure that a breakthrough treatment for people living with the extremely painful skin disease, Epidermolysis bullosa (EB), is supplied to everyone who needs it, once it becomes available in Ireland

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DEBRA Ireland,
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