We are getting closer to a treatment for EB. A team of Irish gene therapy researchers have made a breakthrough in the search for a cure for one of the worst strands of EB. Read about it in the Independent.ie
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In October 2013, Harry Styles tweeted his butterfly tattoo with the following message, “I released my butterfly for EB Awareness Day. Join me.” 180,000 retweets later, EB Awareness Week was born. We asked DEBRA staff why EB Awareness Week is so important…
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Debra Ireland has had a dedicated resource to drive research into better treatments and ultimately a cure for people living with EB for over ten years. I joined the team at Debra Ireland as Research Manager just over a year ago to do just this. My role is very varied covering many areas of research including:
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EB research is expanding significantly and significant steps are being made in the journey for a treatment and cure.
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