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Debra Ireland - The Butterfly Skin Charity

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News and Stories: Research

Good News for EB Treatment

Written by Cheryl Gunning on May 4th 2022

We are delighted to share that the first ever EB specific treatment is one step closer to bedside in Europe. 

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Tags: Research
Categories: News, Research

Alison’s Story

Written by Cheryl Gunning on April 13th 2022

 

Some pain isn’t easy to see. Alison Hyland will be the first to tell you that her EB isn’t as severe as what other people live with.

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Tags: Fundraising and Events, Patient Support, Patients' Stories, Research
Categories: Family Support, Fundraising, News

UCD researchers developing ‘life changing’ treatment for painful skin condition

Written by Cheryl Gunning on July 5th 2021

UNIVERSITY COLLEGE DUBLIN researchers are developing a new therapy which could potentially transform the lives of people with the painful skin disease, EB.

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Tags: Research
Categories: News, Research

DEBRA International research community

Written by Cheryl Gunning on October 1st 2020

In 2019, DEBRA Ireland, DEBRA UK and DEBRA Austria funded a Consensus Conference, bringing EB experts from various parts of the world together to reclassify disorders with skin fragility, focusing on EB.

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Tags: International News, Research
Categories: News, Research

First ever successful Phase III clinical study for a potential wound healing product for EB

Written by Cheryl Gunning on September 14th 2020

Some good news for EB research – Amryt announces positive top line results from pivotal Phase 3 ‘EASE’ trial of FILSUVEZ® in epidermolysis bullosa.

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Tags: Research
Categories: News, Research
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Recent Posts

  • European Commission approves Amryt Pharma’s Filsuvez for use in the EU
  • The First World Congress on Rare Skin Diseases – Paris
  • New Job – Fundraising Administrator (Maternity Cover)
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