We are delighted to share that the first ever EB specific treatment is one step closer to bedside in Europe.
Read MoreGood News for EB Treatment
News and Stories: Research
Alison’s Story
Some pain isn’t easy to see. Alison Hyland will be the first to tell you that her EB isn’t as severe as what other people live with.
Read MoreUCD researchers developing ‘life changing’ treatment for painful skin condition
UNIVERSITY COLLEGE DUBLIN researchers are developing a new therapy which could potentially transform the lives of people with the painful skin disease, EB.
Read MoreDEBRA International research community
In 2019, DEBRA Ireland, DEBRA UK and DEBRA Austria funded a Consensus Conference, bringing EB experts from various parts of the world together to reclassify disorders with skin fragility, focusing on EB.
Read MoreFirst ever successful Phase III clinical study for a potential wound healing product for EB
Some good news for EB research – Amryt announces positive top line results from pivotal Phase 3 ‘EASE’ trial of FILSUVEZ® in epidermolysis bullosa.
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