Debra Ireland has had a dedicated resource to drive research into better treatments and ultimately a cure for people living with EB for over ten years. I joined the team at Debra Ireland as Research Manager just over a year ago to do just this. My role is very varied covering many areas of research including:
Read More
EB research is expanding significantly and significant steps are being made in the journey for a treatment and cure.
Read More
There has been much activity across Europe recently to establish rare disease European Reference Networks (ERNs), “groups of highly specialised providers across the EU”.
Read More
Amicus Therapeutics will acquire Scioderm for its Zorblisa (topical 6% allantoin for the treatment of epidermolysis bullosa)
Read MoreBy continuing to use the site, you agree to the use of cookies. more information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
