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Debra Ireland

Debra Ireland - For people whose skin doesn't work, we do

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News Archives: Rare disease

A European clinical network will improve clinical care for EB

September 23rd 2016

There has been much activity across Europe recently to establish rare disease European Reference Networks (ERNs), “groups of highly specialised providers across the EU”. Continue reading →

Amicus are to acquire Scioderm and further develop their EB wound healing cream

September 4th 2015

Amicus Therapeutics will acquire Scioderm for its Zorblisa (topical 6% allantoin for the treatment of epidermolysis bullosa) Continue reading →

An afternoon of EB research to brighten the last day of winter

February 2nd 2015

Working closely with Dr. Wenxin Wang and his team of EB researchers, DEBRA Ireland organised an exciting afternoon of EB research on the last day in January, 2015. Continue reading →

Why it is not always good to be rare

February 28th 2014

Emma Fogarty, who lives with the rare disease EB, challenges our notions on what it means to be rare, on Rare Disease Day.  Continue reading →

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DEBRA Ireland,
Butterfly Cottage
8 Clanwilliam Terrace
Grand Canal Quay
Dublin 2

Tel: +353-1-412-6924
E: info@debraireland.org
Registered charity number: 8703
Charity regulator number: 20021726

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