As part of the work we are doing with the team in Children’s Health Ireland, Dr Bronagh Kennedy (Senior Clinial Psychologist), has kindly put together some advice for families caring for a child or adolescent with EB.
Kathleena Clancy turned 3 in December. She was born with EB which means certain parts of her body can blister easily and her skin needs to be bandaged. Mum Tina spoke to Thomas Lyons from The Anglo Celt about Kathleena joining their family in 2018.
Find out about our latest news, events, campaigns & more
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.