DEBRA Ireland Patient Ambassador Emma Fogarty was the recipient of a Courage Over Adversity Award at the Hidden Hearing Hidden Hero awards ceremony on Monday 5th September. Her mother Pat was nominated for Unsung Hero for her work caring for Emma. Continue reading
Thank you so much to Rachel Connors, superstar mum to the incredible Casey, for sharing her story in today’s Irish Examiner.
This is the extraordinary story of 14 year old Jonathan Pitre from Canada who has EB. Continue reading
Emma Watson recently tweeted a message about EB to her 15 million followers in support of Sohana Collins, a twelve year old who was born with EB.