Some pain isn’t easy to see. Alison Hyland will be the first to tell you that her EB isn’t as severe as what other people live with.
Read MoreAlison’s Story
News and Stories: Patient Support
Message from EB community outreach nurse Suzi O’Neill
Our EB community outreach nurse, Suzi O’Neill, is an extension of the current EB nursing team and is the link between the hospital and our families; allowing patients to get medical support and advice in the home.
Read MoreUpdate from our Family Support Team
Hi Everyone,
Deirdre and Eve here giving you an update on how we are all doing and checking in with you to see how you are all doing?
Read MoreCOVID-19 Information Booklet
The current COVID-19 pandemic has led to uncertainty and questions for all of us. Our colleagues in DEBRA International have produced an information booklet on COVID-19 for the EB Community.
Read MoreCovid-19 Statement
Coronavirus is a respiratory disease which seems to start with a fever, followed by a dry cough. After a week, it leads to shortness of breath and some patients require hospital treatment.
Read MoreInternational Women’s Day
We want to take time out to celebrate all the incredible women involved in fighting for those living with EB.
Read More
DEBRA Family Christmas Party
We held our family Christmas party in December in the Clayton Hotel, Cardiff Lane, who once again pulled out all the stops to help create a really lovely day for our families.
Read MoreFamily Day in Barretstown
Last year we held our second family weekend in Barretstown, Co Kildare. Families from all over Ireland and the UK living with EB came together for a fun-filled weekend where they spent time with other families living with the condition.
Read More
