The current COVID-19 pandemic has led to uncertainty and questions for all of us. Our colleagues in DEBRA International have produced an information booklet on COVID-19 for the EB Community.
Read MoreCOVID-19 Information Booklet
News and Stories: Patient Support
Covid-19 Statement
Coronavirus is a respiratory disease which seems to start with a fever, followed by a dry cough. After a week, it leads to shortness of breath and some patients require hospital treatment.
Read MoreInternational Women’s Day
We want to take time out to celebrate all the incredible women involved in fighting for those living with EB.
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DEBRA Family Christmas Party
We held our family Christmas party in December in the Clayton Hotel, Cardiff Lane, who once again pulled out all the stops to help create a really lovely day for our families.
Read MoreFamily Day in Barretstown
Last year we held our second family weekend in Barretstown, Co Kildare. Families from all over Ireland and the UK living with EB came together for a fun-filled weekend where they spent time with other families living with the condition.
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