Our EB community outreach nurse, Suzi O’Neill, is an extension of the current EB nursing team and is the link between the hospital and our families; allowing patients to get medical support and advice in the home.
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Hi Everyone,
Deirdre and Eve here giving you an update on how we are all doing and checking in with you to see how you are all doing?
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The current COVID-19 pandemic has led to uncertainty and questions for all of us. Our colleagues in DEBRA International have produced an information booklet on COVID-19 for the EB Community.
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Coronavirus is a respiratory disease which seems to start with a fever, followed by a dry cough. After a week, it leads to shortness of breath and some patients require hospital treatment.
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We want to take time out to celebrate all the incredible women involved in fighting for those living with EB.
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