The current COVID-19 pandemic has led to uncertainty and questions for all of us. Our colleagues in DEBRA International have produced an information booklet on COVID-19 for the EB Community.Read More
We want to take time out to celebrate all the incredible women involved in fighting for those living with EB.
We held our family Christmas party in December in the Clayton Hotel, Cardiff Lane, who once again pulled out all the stops to help create a really lovely day for our families.Read More
Last year we held our second family weekend in Barretstown, Co Kildare. Families from all over Ireland and the UK living with EB came together for a fun-filled weekend where they spent time with other families living with the condition.Read More