Some pain isn’t easy to see. Alison Hyland will be the first to tell you that her EB isn’t as severe as what other people live with.
Read MoreAlison’s Story
News and Stories: Fundraising and Events
Leinster Rugby names DEBRA Ireland as a charity affiliate for December
This Christmas, Leinster Rugby and DEBRA Ireland are set to remember a brave young boy who passed away only a few weeks before he was due to lead the team out as a match day mascot.
Read More2020 DEBRA Ireland Kerry Challenge
DEBRA Ireland’s Kerry Challenge involves three days of trekking through the beautiful, challenging Dingle Peninsula (20-25km per day). The adventure runs from Nov 6 -8 and everyone from first time ramblers to seasoned hikers can take part.
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Meet the team – Virginia Moore
Virginia Moore manages the DEBRA Ireland charity shop at 360 North Circular Road, Phibsborough. As part of our “Meet the Team” series, we spoke to her about how she came to work for DEBRA Ireland and what it’s like to run a charity shop.
Read MoreRachel and Casey Connors in the Irish Independent
Casey Connors (7) was born with recessive dystrophic EB. The worst form of EB you can live with. Mum Rachel spoke to the Irish Independent about how Casey copes with EB now that she has started school.
Read MoreBreakthrough EB research happening in UCD
We are getting closer to a treatment for EB. A team of Irish gene therapy researchers have made a breakthrough in the search for a cure for one of the worst strands of EB. Read about it in the Independent.ie
Read MoreThe heartbreak of losing two babies to EB.
Maria and Barry spoke to The Irish Times about the heartbreak of losing two babies to EB but also the immense love they had for Lola and Luca and how they want to keep helping other families affected by EB.
Read MoreEB Week as seen through the eyes of DEBRA staff
In October 2013, Harry Styles tweeted his butterfly tattoo with the following message, “I released my butterfly for EB Awareness Day. Join me.” 180,000 retweets later, EB Awareness Week was born. We asked DEBRA staff why EB Awareness Week is so important…
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