DEBRA Ireland’s Kerry Challenge involves three days of trekking through the beautiful, challenging Dingle Peninsula (20-25km per day). The adventure runs from May 22 – 24 and everyone from first time ramblers to seasoned hikers can take part.
Virginia Moore manages the DEBRA Ireland charity shop at 360 North Circular Road, Phibsborough. As part of our “Meet the Team” series, we spoke to her about how she came to work for DEBRA Ireland and what it’s like to run a charity shop.
Casey Connors (7) was born with recessive dystrophic EB. The worst form of EB you can live with. Mum Rachel spoke to the Irish Independent about how Casey copes with EB now that she has started school.
We are getting closer to a treatment for EB. A team of Irish gene therapy researchers have made a breakthrough in the search for a cure for one of the worst strands of EB. Read about it in the Independent.ie
Maria and Barry spoke to The Irish Times about the heartbreak of losing two babies to EB but also the immense love they had for Lola and Luca and how they want to keep helping other families affected by EB.
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