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News and Stories: Fundraising and Events

Alison’s Story

Written by Cheryl Gunning on April 13th 2022

 

Some pain isn’t easy to see. Alison Hyland will be the first to tell you that her EB isn’t as severe as what other people live with.

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Tags: Fundraising and Events, Patient Support, Patients' Stories, Research
Categories: Appeals, News

Leinster Rugby names DEBRA Ireland as a charity affiliate for December

Written by Cheryl Gunning on December 7th 2020

This Christmas, Leinster Rugby and DEBRA Ireland are set to remember a brave young boy who passed away only a few weeks before he was due to lead the team out as a match day mascot.

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Tags: Fundraising and Events, Media Coverage, Patients' Stories
Categories: Fundraising, News

2020 DEBRA Ireland Kerry Challenge

Written by Susan Woodcock on March 3rd 2020

DEBRA Ireland’s Kerry Challenge involves three days of trekking through the beautiful, challenging Dingle Peninsula (20-25km per day). The adventure runs from Nov 6 -8 and everyone from first time ramblers to seasoned hikers can take part.


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Tags: Fundraising and Events
Categories: Events, Fundraising, Kerry Challenge, News

Meet the team – Virginia Moore

Written by Cheryl Gunning on February 18th 2020

Virginia Moore manages the DEBRA Ireland charity shop at 360 North Circular Road, Phibsborough. As part of our “Meet the Team” series, we spoke to her about how she came to work for DEBRA Ireland and what it’s like to run a charity shop. 

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Tags: Fundraising and Events
Categories: Meet the Team, News

Rachel and Casey Connors in the Irish Independent

Written by Cheryl Gunning on October 23rd 2019

Casey Connors (7) was born with recessive dystrophic EB. The worst form of EB you can live with. Mum Rachel spoke to the Irish Independent about how Casey copes with EB now that she has started school.

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Tags: Fundraising and Events, Patients' Stories
Categories: Family Support, News

Breakthrough EB research happening in UCD

Written by Cheryl Gunning on October 21st 2019

We are getting closer to a treatment for EB. A team of Irish gene therapy researchers have made a breakthrough in the search for a cure for one of the worst strands of EB. Read about it in the Independent.ie

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Tags: Fundraising and Events, Research
Categories: News, Research

The heartbreak of losing two babies to EB.

Written by Cheryl Gunning on October 17th 2019

Maria and Barry spoke to The Irish Times about the heartbreak of losing two babies to EB but also the immense love they had for Lola and Luca and how they want to keep helping other families affected by EB.

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Tags: Fundraising and Events, Patients' Stories
Categories: Family Support, News

EB Week as seen through the eyes of DEBRA staff

Written by Cheryl Gunning on October 4th 2019

In October 2013, Harry Styles tweeted his butterfly tattoo with the following message, “I released my butterfly for EB Awareness Day. Join me.” 180,000 retweets later, EB Awareness Week was born. We asked DEBRA staff why EB Awareness Week is so important…

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Tags: Advocacy, EB, Fundraising and Events, Research
Categories: News

Your butterfly effect

Written by Cheryl Gunning on September 4th 2018

How your support is changing lives

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Tags: Fundraising and Events
Categories: News
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