Menu
  • What is EB?
  • Home
  • About Us
  • What We Do
  • Get Involved
  • Donate
  • News
Donate

Debra Ireland

Debra Ireland - For people whose skin doesn't work, we do

Facebook Twitter Donate Get Involved Search
  • What is EB?
  • Home
  • About Us
  • What We Do
    • Family Support
    • Research
    • Awareness & Advocacy
  • Get Involved
    • Events
    • Fundraising
  • Donate
  • News
Menu
  • Home
  • >

News and Stories: International News

A European clinical network will improve clinical care for EB

Written by Cheryl Gunning on September 23rd 2016

There has been much activity across Europe recently to establish rare disease European Reference Networks (ERNs), “groups of highly specialised providers across the EU”.

Read More
Tags: Advocacy, International News, Rare disease, Research
Categories: News

Amicus are to acquire Scioderm and further develop their EB wound healing cream

Written by Cheryl Gunning on September 4th 2015

Amicus Therapeutics will acquire Scioderm for its Zorblisa (topical 6% allantoin for the treatment of epidermolysis bullosa)

Read More
Tags: International News, Rare disease, Research
Categories: News

An afternoon of EB research to brighten the last day of winter

Written by Avril Kennan on February 2nd 2015

Working closely with Dr. Wenxin Wang and his team of EB researchers, DEBRA Ireland organised an exciting afternoon of EB research on the last day in January, 2015.

Read More
Tags: International News, Rare disease, Research
Categories: News

Emma Watson supports EB

Written by Cheryl Gunning on December 11th 2014
Emma Watson's tweet

Emma Watson recently tweeted a message about EB to her 15 million followers in support of Sohana Collins, a twelve year old who was born with EB.

Read More
Tags: Advocacy, Fundraising and Events, International News, Media Coverage, Patients' Stories, Research
Categories: News

‘Butterfly child’ dreams of the Northern Lights

Written by Cheryl Gunning on November 10th 2014
Jonathan Pitre dreams of Northern Lights

Nothing, but nothing, is easy in the life of 14-year-old Jonathan Pitre — save for the sleep that descends on him each evening in a cloud of methadone.

Read More
Tags: International News, Patients' Stories
Categories: News
  • 1
  • 2
  • Next »

Recent Posts

  • Rachel and Casey Connors in the Irish Independent
  • Breakthrough EB research happening in UCD
  • The heartbreak of losing two babies to EB.
  • EB Week as seen through the eyes of DEBRA staff
  • Family Day in Barretstown

Categories

  • News

Tags

Advocacy EB election Fundraising and Events International News Media Coverage Patients' Stories Rare disease Research
Follow Us
  • Twitter
  • Facebook
  • Linked In
  • YouTube
Find out about our latest news,
events, campaigns & more
Sign Up

Contact Us

DEBRA Ireland,
Butterfly Cottage
8 Clanwilliam Terrace
Grand Canal Quay
Dublin 2

Tel: +353-1-412-6924
E: info@debraireland.org
Registered charity number: 8703
Charity regulator number: 20021726

Tweets by @debraireland
YouTube

By continuing to use the site, you agree to the use of cookies. more information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close