In 2019, DEBRA Ireland, DEBRA UK and DEBRA Austria funded a Consensus Conference, bringing EB experts from various parts of the world together to reclassify disorders with skin fragility, focusing on EB.
Read More
DEBRA International has played a vital role over the years in progressing research into treatments and cures for EB. We recently published a Research Impact Report to show the fantastic work being done through DEBRA International.
Read More
DEBRA Ireland has a long history of driving and supporting research with the potential to improve the lives of people living with EB.
Read More
The first EB World Congress took place in London last month. 600 delegates from over 50 countries attended the sold out event.
Read More
There has been much activity across Europe recently to establish rare disease European Reference Networks (ERNs), “groups of highly specialised providers across the EU”.
Read More
Amicus Therapeutics will acquire Scioderm for its Zorblisa (topical 6% allantoin for the treatment of epidermolysis bullosa)
Read More
Working closely with Dr. Wenxin Wang and his team of EB researchers, DEBRA Ireland organised an exciting afternoon of EB research on the last day in January, 2015.
Read More
Emma Watson recently tweeted a message about EB to her 15 million followers in support of Sohana Collins, a twelve year old who was born with EB.
Read More
Nothing, but nothing, is easy in the life of 14-year-old Jonathan Pitre — save for the sleep that descends on him each evening in a cloud of methadone.
Read More
