The first EB World Congress took place in London last month. 600 delegates from over 50 countries attended the sold out event.
Read MoreGathering of the worldwide EB community – EB World Congress 2020
News and Stories: International News
A European clinical network will improve clinical care for EB
There has been much activity across Europe recently to establish rare disease European Reference Networks (ERNs), “groups of highly specialised providers across the EU”.
Read MoreAmicus are to acquire Scioderm and further develop their EB wound healing cream
Amicus Therapeutics will acquire Scioderm for its Zorblisa (topical 6% allantoin for the treatment of epidermolysis bullosa)
Read MoreAn afternoon of EB research to brighten the last day of winter
Working closely with Dr. Wenxin Wang and his team of EB researchers, DEBRA Ireland organised an exciting afternoon of EB research on the last day in January, 2015.
Read MoreEmma Watson supports EB
Emma Watson recently tweeted a message about EB to her 15 million followers in support of Sohana Collins, a twelve year old who was born with EB.
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