In 2019, DEBRA Ireland, DEBRA UK and DEBRA Austria funded a Consensus Conference, bringing EB experts from various parts of the world together to reclassify disorders with skin fragility, focusing on EB.
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DEBRA International has played a vital role over the years in progressing research into treatments and cures for EB. We recently published a Research Impact Report to show the fantastic work being done through DEBRA International.
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DEBRA Ireland has a long history of driving and supporting research with the potential to improve the lives of people living with EB.
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The first EB World Congress took place in London last month. 600 delegates from over 50 countries attended the sold out event.
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There has been much activity across Europe recently to establish rare disease European Reference Networks (ERNs), “groups of highly specialised providers across the EU”.
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