One of DEBRA Ireland’s core strategic objectives continues to be to lobby those responsible for healthcare spending decisions in Ireland to put EB at the top of their agenda. With your help, we make sure our EB families always have a voice.
EB representatives attend the launch of the EB outreach nurse report
One of DEBRA Ireland’s core strategic objectives is to lobby those responsible for healthcare spending decisions in Ireland, to ensure that proposed policies are realistic, achievable and sustainable for people living with EB.
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At the beginning of June, The Future of Healthcare Committee published its Sláintecare report.
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There has been much activity across Europe recently to establish rare disease European Reference Networks (ERNs), “groups of highly specialised providers across the EU”.
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The Programme for a Partnership Government and 32nd Dáil was published last week. We have summarised it to find out what it means for people living with EB.
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