DEBRA Ireland is dedicated to driving and supporting research into effective treatments for EB.

We do this by:

  • Supporting national research into EB, through the UCD Charles Institute of Dermatology, and providing evidence to support advocating for better EB services.
  • Advocating and supporting research for rare diseases in Ireland.
  • Funding international research to understand EB and develop potential treatments.
  • Communicating progress in research to our families living with EB.
  • Driving the development of an Irish and international EB patient registry.
  • Keeping the patients at our core by promoting patient and public involvement in EB research.