Our patients are closer to a cure than ever through the DEBRA International research programme into gene therapy, protein replacement therapy and bone marrow transplant.

DEBRA Ireland maintains the EB Care register of patients in Ireland. This captures detailed information about EB which is vital for researchers to develop therapies.

A state-of-the-art dermatology research centre, The Charles Institute at UCD now houses and EB Research Programme investigating gene therapy treatments for wound healing.

Please read our guide to clinical research, which is becoming increasingly relevant as we move into testing possible treatment in patients.