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The Government has been urged to ensure that a breakthrough treatment for people living with the extremely painful skin disease, Epidermolysis bullosa (EB), is supplied to everyone who needs it, once it becomes available in Ireland

We’ll keep fighting every single day until no one living with EB has to struggle to get the care they need

The Government has been urged to ensure that a breakthrough treatment for people living with the extremely painful skin disease, Epidermolysis bullosa (EB), is supplied to everyone who needs it, once it becomes available in Ireland
