Sign our open letter to the Minister for Health
Many children and adults living with epidermolysis bullosa (EB)* are struggling to get access to support they desperately need such as reliable and flexible home nursing care, specialist advice and mental health support.
Ahead of the Budget announcement later this year, we’re calling on the Government to invest in improving services and expanding support for people living with EB and their families.
Will you add your name to our open letter to the Minister for Health, Stephen Donnelly, asking him to set aside €941,000 in the Budget to make sure people living with EB get the care and support they urgently need?
Budget decisions are being made now, so we need to act fast. The Government will be announcing the 2023 Budget in October, and is reviewing submissions over the summer.