Rare Rare everywhere,

During the first week of March this year Storm Emma brought Ireland to a standstill. Accessibility to transport, medical centers and basic services were either limited or non-existent.  

Inspired by the courage of people living with the incredibly painful skin disease EB, fuel retailer Applegreen has chosen Debra Ireland as charity partners for a second two-year term.

We are very excited to share some good news with you in the world of EB research. Professor Michele De Luca from the Centre for Regenerative Medicine University of Modena and Reggio Emilia and colleagues have reconstructed skin covering approximately 80% of the total body surface area for a seven-year-old child born with Junctional EB.