One of DEBRA Ireland’s core strategic objectives is to lobby those responsible for healthcare spending decisions in Ireland, to ensure that proposed policies are realistic, achievable and sustainable for people living with EB.
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EB research is expanding significantly and significant steps are being made in the journey for a treatment and cure.
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Our family support service continues to offer emotional, practical and financial support to families living with EB.
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Rare Rare everywhere,
During the first week of March this year Storm Emma brought Ireland to a standstill. Accessibility to transport, medical centers and basic services were either limited or non-existent.
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