Liz and Claudia were recently interviewed by Ailin Quinlan for the Irish Independents Health and Living Supplement. Well done ladies, the article gives such amazing and honest insight into living with EB. Click here to read the full article.
The Cogan family recently spoke to Eilish O’Regan from the Independent about the impact of Budget 2014 on their family. The recent decision to offer free childcare to children under 5 will not benefit them and their 8 year old daughter Katelynn. Click here to read the full story.
Jimmy and Avril recently traveled to the annual DEBRA International Congress meeting, held this year in Rome. There, they had the pleasure of meeting the lovely Dorothee Rahn (Doro). Doro is a journalist and shared this insightful article on her experiences of the meeting with us…..
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