Rare Rare everywhere,

During the first week of March this year Storm Emma brought Ireland to a standstill. Accessibility to transport, medical centers and basic services were either limited or non-existent.   Continue reading

We are very excited to share some good news with you in the world of EB research. Professor Michele De Luca from the Centre for Regenerative Medicine University of Modena and Reggio Emilia and colleagues have reconstructed skin covering approximately 80% of the total body surface area for a seven-year-old child born with Junctional EB.  Continue reading