We are very excited to share some good news with you in the world of EB research. Professor Michele De Luca from the Centre for Regenerative Medicine University of Modena and Reggio Emilia and colleagues have reconstructed skin covering approximately 80% of the total body surface area for a seven-year-old child born with Junctional EB.  Continue reading

Jayden Moore-Connors to Honour All Those Living With EB

DEBRA Ireland is the only charity in Ireland that provides hope and support to all patients and their families living with EB (epidermolysis bullosa) and as one of Leinster Rugby’s two charity partners, Saturday afternoon’s game against Montpellier is their match day take over and as part of that Leinster Rugby have presented a mascot slot to Debra Ireland. Continue reading

All EB families have access to apply for a number of grants under our Family Support Service. These grants range from respite grants, hospital grants, emergency grants and equipment grants. Despite funding being unpredictable, we remain committed to our families keeping their needs at the centre of our priorities. Continue reading