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  • What is EB?
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DEBRA Ireland News and Stories

Spring DEBRA Ireland Newsletter 2022

Written by Cheryl Gunning on February 15th 2022

Welcome to our Spring Newsletter.

When we asked our families with EB, they told us their top priority is research. That’s why we are delighted to share with them and with you, in our newsletter some exciting research news.

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Categories: Family Support, Fundraising, Meet the Team, News, Research

Autumn DEBRA Ireland Newsletter 2021

Written by Cheryl Gunning on September 23rd 2021

Welcome to our Autumn Newsletter. We are delighted to share with you all the exciting things happening in DEBRA Ireland and stories from our amazing patients living with EB.

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Categories: Family Support, Meet the Team, News, Research

Message from EB community outreach nurse Suzi O’Neill

Written by Cheryl Gunning on July 1st 2020

Our EB community outreach nurse, Suzi O’Neill, is an extension of the current EB nursing team and is the link between the hospital and our families; allowing patients to get medical support and advice in the home.

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Tags: Patient Support
Categories: Family Support, Meet the Team, News

Meet the team – Virginia Moore

Written by Cheryl Gunning on February 18th 2020

Virginia Moore manages the DEBRA Ireland charity shop at 360 North Circular Road, Phibsborough. As part of our “Meet the Team” series, we spoke to her about how she came to work for DEBRA Ireland and what it’s like to run a charity shop. 

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Tags: Fundraising and Events
Categories: Meet the Team, News

Recent Posts

  • Good News for EB Treatment
  • Alison’s Story
  • Understanding Immunity and Fibrosis in Recessive Dystrophic EB
  • New Job – Communications Manager
  • Spring DEBRA Ireland Newsletter 2022

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DEBRA Ireland,
Butterfly Cottage
8 Clanwilliam Terrace
Grand Canal Quay
Dublin 2

Tel: +353-1-412-6924
E: [email protected]
Registered charity number: 8703
Charity regulator number: 20021726

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