Some pain isn’t easy to see. Alison Hyland will be the first to tell you that her EB isn’t as severe as what other people live with.
EB leaves scars you can see – and scars that can only be felt.
Your caring drives the research that is our EB families’ only hope.
Alison isn’t watching her fingers slowly fuse together. And she hasn’t experienced the trauma of skin cancer.
But the pain of EB on the inside hurts too. As well as her external injuries, Alison has narrowing in her oesophagus. Even swallowing food can cause friction that results in blistering and cuts.
The only hope for Alison and others living with EB is research. And research will only happen with your support.
For people with EB and the people who love them, every day is painful. You can change that. Alison’s parents had never even heard of EB. When they brought her home, they had no idea what she – and they – would face. It was only when she started crawling that they noticed something wasn’t right.
One day, her mam removed her socks and found her feet covered in blisters that had erupted.
And that’s why we need people with caring hearts, like you. Because EB isn’t widely known or understood, people suddenly dealing with it need a great deal of information and support.
The truth is that right now, we can’t do much except make people with EB a bit more comfortable. And without research, there’s not much but painful bandage changes and difficult surgeries.
People with EB deserve better. And with your compassionate help, we can find the answers they urgently need.
Alison is determined to help other people living with EB. She is studying Genetics and Cell Biology in DCU, and wants to help find a cure by offering any knowledge she might have from living with EB.
Our work is not done until every EB patient is able to live without the daily pain that comes with this devastating condition.
Research is the key to treatment. It’s the only way people like Alison will live with less pain and suffering.
Please help families like Alison’s. They need all the love and support you can give.