Some pain isn’t easy to see. Alison Hyland will be the first to tell you that her EB isn’t as severe as what other people live with.
Read MoreAlison’s Story
DEBRA Ireland News and Stories
Spring DEBRA Ireland Newsletter 2022
Welcome to our Spring Newsletter.
When we asked our families with EB, they told us their top priority is research. That’s why we are delighted to share with them and with you, in our newsletter some exciting research news.
Read MoreSummer DEBRA Ireland Newsletter
Leinster Rugby names DEBRA Ireland as a charity affiliate for December
This Christmas, Leinster Rugby and DEBRA Ireland are set to remember a brave young boy who passed away only a few weeks before he was due to lead the team out as a match day mascot.
Read MoreLeah Barniville – O’ Holy Night for DEBRA Ireland
Leah Barniville, the Irish star of Britain’s Got Talent in 2017, has recorded and released a stunning version of the traditional Christmas hymn O Holy Night, just in time for the festive season to raise awareness and support for families living with EB.
Read More
