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DEBRA Ireland News and Stories

Alison’s Story

Written by Cheryl Gunning on April 13th 2022

 

Some pain isn’t easy to see. Alison Hyland will be the first to tell you that her EB isn’t as severe as what other people live with.

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Tags: Fundraising and Events, Patient Support, Patients' Stories, Research
Categories: Family Support, Fundraising, News

Spring DEBRA Ireland Newsletter 2022

Written by Cheryl Gunning on February 15th 2022

Welcome to our Spring Newsletter.

When we asked our families with EB, they told us their top priority is research. That’s why we are delighted to share with them and with you, in our newsletter some exciting research news.

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Categories: Family Support, Fundraising, Meet the Team, News, Research

Summer DEBRA Ireland Newsletter

Written by Cheryl Gunning on July 6th 2021

Welcome to the summer 2021 edition of our newsletter.

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Categories: Events, Family Support, Fundraising, News, Research

Leinster Rugby names DEBRA Ireland as a charity affiliate for December

Written by Cheryl Gunning on December 7th 2020

This Christmas, Leinster Rugby and DEBRA Ireland are set to remember a brave young boy who passed away only a few weeks before he was due to lead the team out as a match day mascot.

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Tags: Fundraising and Events, Media Coverage, Patients' Stories
Categories: Fundraising, News

Leah Barniville – O’ Holy Night for DEBRA Ireland

Written by Cheryl Gunning on November 27th 2020

Leah Barniville, the Irish star of Britain’s Got Talent in 2017, has recorded and released a stunning version of the traditional Christmas hymn O Holy Night, just in time for the festive season to raise awareness and support for families living with EB.

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Categories: Fundraising, News
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Recent Posts

  • Good News for EB Treatment
  • Alison’s Story
  • Understanding Immunity and Fibrosis in Recessive Dystrophic EB
  • New Job – Communications Manager
  • Spring DEBRA Ireland Newsletter 2022

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DEBRA Ireland,
Butterfly Cottage
8 Clanwilliam Terrace
Grand Canal Quay
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Tel: +353-1-412-6924
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Registered charity number: 8703
Charity regulator number: 20021726

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