
Some pain isn’t easy to see. Alison Hyland will be the first to tell you that her EB isn’t as severe as what other people live with.
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Some pain isn’t easy to see. Alison Hyland will be the first to tell you that her EB isn’t as severe as what other people live with.
Read MoreWelcome to our Spring Newsletter.
When we asked our families with EB, they told us their top priority is research. That’s why we are delighted to share with them and with you, in our newsletter some exciting research news.
Read MoreThis Christmas, Leinster Rugby and DEBRA Ireland are set to remember a brave young boy who passed away only a few weeks before he was due to lead the team out as a match day mascot.
Read MoreLeah Barniville, the Irish star of Britain’s Got Talent in 2017, has recorded and released a stunning version of the traditional Christmas hymn O Holy Night, just in time for the festive season to raise awareness and support for families living with EB.
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