
Welcome to the winter 2021 edition of our newsletter.
Read MoreOur EB community outreach nurse, Suzi O’Neill, is an extension of the current EB nursing team and is the link between the hospital and our families; allowing patients to get medical support and advice in the home.
Read MoreHi Everyone,
Deirdre and Eve here giving you an update on how we are all doing and checking in with you to see how you are all doing?
Read MoreKathleena Clancy’s parents knew she had the painful skin condition EB before they adopted her from Wuhan.
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