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Debra Ireland

Debra Ireland - For people whose skin doesn't work, we do

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MENUMENU
  • What is EB?
  • Home
  • About Us
    • About DEBRA Ireland
    • Governance and Management
    • Our Promise
    • What is EB?
    • Our Ambassadors
    • Celebrity Champions
    • DEBRA International
  • What We Do
    • Family Support
      • Young people with EB
      • EB Cards
      • Real Life Stories
      • The Butterfly Garden
      • Meet the Team
      • Family Support Services
      • Health Entitlements
      • The Hospital Referral Process
    • Research
      • EB Research in the News
      • DEBRA Ireland’s Involvement in Research
      • Patient and Public Involvement
      • EB Patient Registries
      • Clinical Research
      • DEBRA Ireland Research Committee
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      • Improving care
      • Progressing the development of therapies
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DEBRA Ireland News and Stories

Winter DEBRA Ireland Newsletter

Written by Cheryl Gunning on February 2nd 2021

Welcome to the winter 2021 edition of our newsletter.

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Categories: Family Support, News, Research

Christmas Appeal

Written by Cheryl Gunning on November 20th 2020

When all your child wants for Christmas is the pain to go away.

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Categories: Family Support, Fundraising, News

Message from EB community outreach nurse Suzi O’Neill

Written by Cheryl Gunning on July 1st 2020

Our EB community outreach nurse, Suzi O’Neill, is an extension of the current EB nursing team and is the link between the hospital and our families; allowing patients to get medical support and advice in the home.

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Tags: Patient Support
Categories: Family Support, Meet the Team, News

Update from our Family Support Team

Written by Deirdre Callis on June 12th 2020

Hi Everyone,

Deirdre and Eve here giving you an update on how we are all doing and checking in with you to see how you are all doing?

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Tags: Patient Support
Categories: Family Support, News

Kathleena Clancy in The Irish Examiner

Written by Cheryl Gunning on May 7th 2020

Kathleena Clancy’s parents knew she had the painful skin condition EB before they adopted her from Wuhan.

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Tags: Patients' Stories
Categories: Family Support, News
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Recent Posts

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DEBRA Ireland,
Butterfly Cottage
8 Clanwilliam Terrace
Grand Canal Quay
Dublin 2

Tel: +353-1-412-6924
E: info@debraireland.org
Registered charity number: 8703
Charity regulator number: 20021726

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