Our EB community outreach nurse, Suzi O’Neill, is an extension of the current EB nursing team and is the link between the hospital and our families; allowing patients to get medical support and advice in the home.
Read More
Hi Everyone,
Deirdre and Eve here giving you an update on how we are all doing and checking in with you to see how you are all doing?
Read More
Kathleena Clancy’s parents knew she had the painful skin condition EB before they adopted her from Wuhan.
Read More
The current COVID-19 pandemic has led to uncertainty and questions for all of us. Our colleagues in DEBRA International have produced an information booklet on COVID-19 for the EB Community.
Read MoreBy continuing to use the site, you agree to the use of cookies. more information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
