
Some pain isn’t easy to see. Alison Hyland will be the first to tell you that her EB isn’t as severe as what other people live with.
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Some pain isn’t easy to see. Alison Hyland will be the first to tell you that her EB isn’t as severe as what other people live with.
Read MoreWelcome to our Spring Newsletter.
When we asked our families with EB, they told us their top priority is research. That’s why we are delighted to share with them and with you, in our newsletter some exciting research news.
Read MoreWelcome to our Autumn Newsletter. We are delighted to share with you all the exciting things happening in DEBRA Ireland and stories from our amazing patients living with EB.
Read MoreTina Tully and John Clancy decided to adopt four-year old Kathleena, who was born with EB.
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