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MENUMENU
  • What is EB?
  • Home
  • About Us
    • About DEBRA Ireland
    • Governance and Management
    • Our impact reports and financial accounts
    • Our Promise
    • What is EB?
    • Our Ambassadors
    • Celebrity Champions
    • DEBRA International
  • What We Do
    • Family Support
      • Young people with EB
      • EB Cards
      • Real Life Stories
      • The Butterfly Garden
      • Meet the Team
      • Family Support Services
      • Health Entitlements
      • The Hospital Referral Process
    • Research
      • EB Research in the News
      • DEBRA Ireland’s Involvement in Research
      • Patient and Public Involvement
      • EB Patient Registries
      • Clinical Research
      • DEBRA Ireland Research Committee
    • Awareness & Advocacy
      • Working together for rare diseases
      • Improving health entitlements
      • Improving care
      • Progressing the development of therapies
      • Our Future
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      • Gifts in Wills
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      • Facebook fundraising
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Advocacy

Advocacy
We’ll keep fighting every single day until no one living with EB has to struggle to get the care they need 28 October 2022
Advocacy
Budget 2023 reaction 29 September 2022
Advocacy
Vaccine for Carers campaign 1 April 2021
Advocacy
Common questions about COVID-19 & EB 11 February 2021
AdvocacyFamily Support
COVID-19 Information Booklet 6 April 2020
AdvocacyFamily Support
COVID-19 Pandemic Unemployment Payment 23 March 2020
AdvocacyFamily SupportResearch
International Women’s Day 3 March 2020
AdvocacyFamily SupportResearch
Rare Disease Day 2020 27 February 2020
What is EB? 3 July 2019
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DEBRA Ireland,
Butterfly Cottage
8 Clanwilliam Terrace
Grand Canal Quay
Dublin 2

Tel: +353-1-412-6924
E: [email protected]
Registered charity number: 8703
Charity regulator number: 20021726

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