This booklet is a collection of true short stories of 13 amazing young people who are all living with different types of EB. Our hope is that those living with EB or another rare condition will read this booklet and relate to one or more of the amazing stories and know they are not alone.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Thank you to all our EB heroes for sharing their stories with us.

For details on our family support please contact our family support worker Deirdre [email protected]