The extraordinary butterfly Casey

Casey is a bright and inquisitive little three year old who was born with EB. Her extraordinary strength and courage will move you to tears. But like all our EB heroes she is also a real fighter. 

Casey was born with EB which means she has no collagen so her skin is extremely delicate and blisters at the slightest touch. Recently, she tripped over a small Peppa Pig toy and fell and tore the skin from her knees and feet. She could not walk for a week because of the fall.

Currently there is no cure for EB and the only treatment is constant painful bandaging of skin to prevent infection.


To support patients like Casey, please text BUTTERFLY to 50300 to donate €4 or donate HERE