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MENUMENU
  • What is EB?
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  • About Us
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  • Real Life Stories

Real Life Stories

 

Emma

The doctors told my parents that I would never last the week and if I did I would have no quality of life.

 

Claudia

Claudia is a smashing little girl, who loves all things pink and glamorous.

 
EB hero Casey Connors
EB hero Casey Connors

Casey

Her extraordinary strength and courage will move you to tears. But like all our EB heroes she is also a real fighter.

 
Liam_and_Deirdre
Liam_and_Deirdre

Liam

We loved Liam with every ounce of our hearts. He brought us so much joy - that never changed but having a child with EB had its struggles, particularly at the start.

 
Charley_Ward
Charley_Ward

Charley

On the 25th September 2011 our beautiful daughter Charley was born. That was the day everything changed.

 

Ruairi

When Ruaidhri was born, his mum Amanda saw the blisters. She knew immediately that her son had the same condition she and her four sisters did.

 

Aaron

Aaron was the eldest of my 6 children and the one who shaped our family into the family it is today.

 
Katie Quinlan
Katie Quinlan

Miriam

Seeing my Katie being held and fed just like any other baby was a beautiful sight.

 
Curtis Kenny
Curtis Kenny

Curtis

We were having another little boy and we were all very excited.

 
Adam Graham
Adam Graham

Adam

It was easy to write this piece to honour Adam and all the courage he demonstrated right to the end.

 
Robert O'Neill
Robert O'Neill

Robert

Known by his friends and family as ‘Bob’, he had this amazing attitude and spark for life!

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DEBRA Ireland,
Butterfly Cottage
8 Clanwilliam Terrace
Grand Canal Quay
Dublin 2

Tel: +353-1-412-6924
E: [email protected]
Registered charity number: 8703
Charity regulator number: 20021726

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