Real Life Stories Emma The doctors told my parents that I would never last the week and if I did I would have no quality of life. Claudia Claudia is a smashing little girl, who loves all things pink and glamorous. Casey Her extraordinary strength and courage will move you to tears. But like all our EB heroes she is also a real fighter. Liam We loved Liam with every ounce of our hearts. He brought us so much joy - that never changed but having a child with EB had its struggles, particularly at the start. Charley On the 25th September 2011 our beautiful daughter Charley was born. That was the day everything changed. Aaron Aaron was the eldest of my 6 children and the one who shaped our family into the family it is today. Miriam Seeing my Katie being held and fed just like any other baby was a beautiful sight. Curtis We were having another little boy and we were all very excited. Adam It was easy to write this piece to honour Adam and all the courage he demonstrated right to the end. Robert Known by his friends and family as ‘Bob’, he had this amazing attitude and spark for life!