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Real Life Stories

Real Life Stories

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/10514679_657131627710689_5175748559099869945_n-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="" srcset="https://debraireland.org/wp-content/uploads/10514679_657131627710689_5175748559099869945_n-258x168.jpg 258w, https://debraireland.org/wp-content/uploads/10514679_657131627710689_5175748559099869945_n-337x220.jpg 337w" sizes="(max-width: 258px) 100vw, 258px" />

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/10514679_657131627710689_5175748559099869945_n-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="" srcset="https://debraireland.org/wp-content/uploads/10514679_657131627710689_5175748559099869945_n-258x168.jpg 258w, https://debraireland.org/wp-content/uploads/10514679_657131627710689_5175748559099869945_n-337x220.jpg 337w" sizes="(max-width: 258px) 100vw, 258px" />

Emma

The doctors told my parents that I would never last the week and if I did I would have no quality of life.

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/Thank-you-Claudia-Liz1-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="" srcset="https://debraireland.org/wp-content/uploads/Thank-you-Claudia-Liz1-258x168.jpg 258w, https://debraireland.org/wp-content/uploads/Thank-you-Claudia-Liz1-337x220.jpg 337w" sizes="(max-width: 258px) 100vw, 258px" />

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/Thank-you-Claudia-Liz1-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="" srcset="https://debraireland.org/wp-content/uploads/Thank-you-Claudia-Liz1-258x168.jpg 258w, https://debraireland.org/wp-content/uploads/Thank-you-Claudia-Liz1-337x220.jpg 337w" sizes="(max-width: 258px) 100vw, 258px" />

Claudia

Claudia is a smashing little girl, who loves all things pink and glamorous.

EB hero Casey Connors

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/11048617_788532127903971_6342880977465370611_o-e1435766171468-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="EB hero Casey Connors" srcset="https://debraireland.org/wp-content/uploads/11048617_788532127903971_6342880977465370611_o-e1435766171468-258x168.jpg 258w, https://debraireland.org/wp-content/uploads/11048617_788532127903971_6342880977465370611_o-e1435766171468-337x220.jpg 337w" sizes="(max-width: 258px) 100vw, 258px" />

EB hero Casey Connors

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/11048617_788532127903971_6342880977465370611_o-e1435766171468-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="EB hero Casey Connors" srcset="https://debraireland.org/wp-content/uploads/11048617_788532127903971_6342880977465370611_o-e1435766171468-258x168.jpg 258w, https://debraireland.org/wp-content/uploads/11048617_788532127903971_6342880977465370611_o-e1435766171468-337x220.jpg 337w" sizes="(max-width: 258px) 100vw, 258px" />

Casey

Her extraordinary strength and courage will move you to tears. But like all our EB heroes she is also a real fighter.

Liam_and_Deirdre

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/1___9930-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="Liam_and_Deirdre" srcset="https://debraireland.org/wp-content/uploads/1___9930-258x168.jpg 258w, https://debraireland.org/wp-content/uploads/1___9930-337x220.jpg 337w" sizes="(max-width: 258px) 100vw, 258px" />

Liam_and_Deirdre

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/1___9930-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="Liam_and_Deirdre" srcset="https://debraireland.org/wp-content/uploads/1___9930-258x168.jpg 258w, https://debraireland.org/wp-content/uploads/1___9930-337x220.jpg 337w" sizes="(max-width: 258px) 100vw, 258px" />

Liam

We loved Liam with every ounce of our hearts. He brought us so much joy - that never changed but having a child with EB had its struggles, particularly at the start.

Charley_Ward

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/IMG_0021-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="Charley_Ward" srcset="https://debraireland.org/wp-content/uploads/IMG_0021-258x168.jpg 258w, https://debraireland.org/wp-content/uploads/IMG_0021-337x220.jpg 337w" sizes="(max-width: 258px) 100vw, 258px" />

Charley_Ward

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/IMG_0021-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="Charley_Ward" srcset="https://debraireland.org/wp-content/uploads/IMG_0021-258x168.jpg 258w, https://debraireland.org/wp-content/uploads/IMG_0021-337x220.jpg 337w" sizes="(max-width: 258px) 100vw, 258px" />

Charley

On the 25th September 2011 our beautiful daughter Charley was born. That was the day everything changed.

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/Aaron-Fynes-cropped-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="" />

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/Aaron-Fynes-cropped-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="" />

Aaron

Aaron was the eldest of my 6 children and the one who shaped our family into the family it is today.

Katie Quinlan

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/katie-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="Katie Quinlan" />

Katie Quinlan

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/katie-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="Katie Quinlan" />

Miriam

Seeing my Katie being held and fed just like any other baby was a beautiful sight.

Curtis Kenny

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/CIMG2451-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="Curtis Kenny" />

Curtis Kenny

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/CIMG2451-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="Curtis Kenny" />

Curtis

We were having another little boy and we were all very excited.

Adam Graham

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/AdamGraham-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="Adam Graham" />

Adam Graham

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/AdamGraham-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="Adam Graham" />

Adam

It was easy to write this piece to honour Adam and all the courage he demonstrated right to the end.

Robert O'Neill

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/Robert-ONeill-Red-Ferrari-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="Robert O'Neill" />

Robert O'Neill

<img width="258" height="168" src="https://debraireland.org/wp-content/uploads/Robert-ONeill-Red-Ferrari-258x168.jpg" class="attachment-258x168 size-258x168 wp-post-image" alt="Robert O'Neill" />

Robert

Known by his friends and family as ‘Bob’, he had this amazing attitude and spark for life!

In This Section

EB Cards
Young people with EB
Family Support Services
- Respite Grant
  - Respite Grant Application
Meet the Team
Health Entitlements
The Hospital Referral Process
Real Life Stories
- Emma
- Claudia
- Casey
- Liam
- Charley
- Aaron
- Miriam
- Curtis
- Adam
- Robert
The Butterfly Garden

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DEBRA Ireland,
Butterfly Cottage
8 Clanwilliam Terrace
Grand Canal Quay
Dublin 2

Tel: +353-1-412-6924
E: [email protected]
Registered charity number: 8703
Charity regulator number: 20021726

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