Rainbow Services

The Rainbows programme supports children and young people affected by loss because of bereavement, separation or divorce. The service is available in local communities and selected schools throughout Ireland. The Rainbows programme may be running in your child’s school. If the programme is not running in your child’s school you can look for the list of community centres which are running the programme to find a suitable centre for your child to do the programme. Follow the link below and click on your area. Community centres are listed on the left and schools are listed on the right of the page.

www.rainbowsireland.ie/where-is-rainbows

Play Therapy

Play provides a way for children to express their experiences and feelings through a natural, self-guided, self-healing process. As children’s experiences and knowledge are often communicated through play, it becomes an important vehicle for them to know and accept themselves and others. Play therapy may be helpful for your child with EB or for their siblings. Play Therapy Ireland and the Irish Play Therapy Association can recommend a therapist in your area if you email them.

Play Therapy Ireland: [email protected]

Irish Play Therapy Association: [email protected]

Counselling

There are several counsellors working in Co. Kilkenny. You can find a counsellor who suits your needs and location by visiting the Irish Association for Counselling and Pysychotherapy (IACP) or the Irish Association of Humanistic and Integrative Psychotherapy (IAHIP) websites. Both websites provide a handy tool which helps you to find a therapist in your area and gives you details of the work which they do. You can also contact both bodies by telephone to enquire about local counsellors.

IAHIP

Website: www.iahip.org/find-a-therapist

Telephone: 01-2841665

IACP

Website: www.iacp.ie

Telephone: 01-2303536

Barnardos

Barnardos run Family Support Services such as parenting programmes, after school groups and family welfare conferences which offer all family members a chance to gather, discuss and make future plans to help your child. Barnardos offer advice and support in a non-judgemental way. You can refer your child yourself by contacting your local centre or you can ask your public health nurse or GP to refer your child. Contact your local service centre or visit Barnardos website for more information. Follow the link below to find your local service. Website: www.barnardos.ie/contact/barnardos-service-centres-contact-details.html

There is currently no Barnardos service in Co. Kilkenny

Enable Ireland

Services are available to children (aged 0-18) living in Co. Kilkenny who have a physical disability. Some children who have EB may benefit from this service. Children can be referred to the service by their GP or hospital consultant or through your local Community Health Centre. It is important to include as much information about your child’s condition as possible and to include any medical reports which have been written about your child when you are making a referral. For more information you can visit www.enableireland.ie or you can contact Enable Ireland in Kilkenny.

Address: Enable Ireland, O’Neill Centre, St Joseph’s Road, Kilkenny.

Telephone: 056-7762326

Email: [email protected]

Community Health Centres

At your local community health centre, you can apply for services, meet your Public Health Nurse and find information about health and personal social services. The Public Health Nurse is an important person in providing care in the community for people with EB. In order to contact your Public Health Nurse contact your nearest centre and ask for the Public Health Nurse who covers your address.

                          Area                        Telephone
James’s Green, Kilkenny 056-7784600
Ayrfield, Granges Road, Kilkenny 0761-082111
Ballyhale 056-7768608
Ballyragget 056-8833105
Bennettsbridge 056-7727256
Callan 0761-082150
Castlecomer 056-4441542
Clogh 056-4442189
Freshford 056-8832261
Glenmore 051-880288
Gowran 056-7726265
Graiguenemanagh 059-9724495
Marley 059-9724245
Tinnahinch 059-9724267
Inistioge 056-7758465
Johnstown 056-8831618
Loughboy 056-7760613
Stoneyford 056-7728377
Kilmacow 051-885283
Mooncoin 051-895163
Mullinavat 051-898217
Paulstown 059-9726314
Piltown 051-643116
Rosbercon 051-421653
Slieverue 051-832640
Thomastown 056-7724302
Urlingford 056-8831352
Windgap 051-648155

Personal Assistant Service

The HSE will sometimes provide a Personal Assistant service for people with physical disabilities who are over the age of 18. Personal Assistants work practically with individuals with disabilities to enable access to the community and to increase the person’s ability to live independently in the community. The work the Personal Assistant does is led by the individual they are working with. Currently there is very little funding for the Personal Assistant service and it is becoming increasingly difficult to obtain access to the service. However, if you feel that you or a family member could benefit from this service you can contact your Local Health Office to see if the service is being provided in your area. Below is a link to the list of Local Health Offices in Ireland.

www.hse.ie/eng/services/list/1/LHO/

Supplementary Welfare

Supplementary welfare can be applied for during clinic times in the below local offices. You should attend the clinic which is closest to your home during the set time which are shown below. Supplementary welfare includes exceptional needs payments, urgent needs payments, dietary needs payments, back to school clothing and footwear allowance, school meals programme, rent supplement, mortgage interest supplement, humanitarian assistance scheme and basic supplementary welfare allowance.

List of local centres: www.welfare.ie/en/Pages/otheroffice/community-welfare-office-kilkenny.aspx

Housing

The housing department advises on and assists with queries on social and affordable housing, housing standards, rents, housing repairs, adaptation for disability etc. You can contact them with your query using the below information.

Address: Housing Department, John’s Green House, John’s Green, Kilkenny

Phone: 056-7794900
Email: [email protected]

If you are living in private rented accommodation you can contact Threshold or the Private Residential Tenancies Board (PRTB). Both bodies also have a helpful Frequently Asked Questions page on their websites.

Threshold – Frequently asked questions: www.threshold.ie/advice/

Phone number:  1890 334 334

Private Residential Tenancies Board – Frequently asked questions: www.prtb.ie/tenants/helpful-info

Phone number: 0818 30 30 37

Citizens Information

Citizens Information give free confidential and independent information on a range of issues including social welfare services, housing, health, family and relationships, education and employment. This information can be accessed online, on the telephone or in person at local centres across the county. There is also a centre located in Our Lady’s Hospital, Crumlin which is open on Tuesday and Thursday mornings from 9:30am-12:30pm which might be helpful for you and your family.

Online: www.citizensinformation.ie

Telephone: 0761-074000 (Monday to Friday, 9am to 8pm)

List of local centres: centres.citizensinformation.ie/county.php?county=kilkenny

MABS

The Money Advice and Budgeting Service can give you advice on how to handle the extra costs involved in caring for a child with EB. They have a national helpline which is open from Monday to Friday 9am to 8pm and they also have a centre located in Kilkenny city.

Website: www.mabs.ie

National Helpline: 0761-072000

List of local centres: www.mabs.ie/contact-mabs/kilkenny/