What is EB?

what is EB?_ Debra Ireland _ Irish Charity

  • EB = Epidermolysis Bullosa. A severe rare genetic skin blistering condition.
  • EB = Extraordinary Butterflies. EB skin is as fragile as the wings of a butterfly.
  • EB = Endless Blistering. Even gentle skin contact causes devastating wounds.
  • EB = Excruciating Bandaging. When dressings stick, the skin often comes away too.
  • EB = Exhausting Battle. There is no cure and a high risk of developing aggressive skin cancer.

EB = the worst disease you’ve never heard of.