The DEBRA International congress

We are counting down the days now, till we meet our International colleagues at the DEBRA International Congress in Rome, from the 20th to 22nd of September. The programme this year has taken its inspiration from the life stages of the person living with EB and will include the testimonies of patients and parents, as well as the expertise of researchers and medical professionals. Our CEO, Jimmy Fearon, and Research Manager, Avril Kennan, will be representing DEBRA Ireland at the conference.

The second EB-CLINET conference

EB-CLINET is a shining example of a network of people working toward a common goal. In this case, the goal is to improve the medical care of people with EB. The second conference of EB-CLINET will be held in Salzburg on the 17th and 18th of September and promises to be every bit as valuable as the first. Major focuses will include current clinical challenges in EB, clinical practice guidelines, professional´s education and training, EB registries and the translation of research into therapies. For those clinical experts attending, we very much look forward to seeing you there.  Avril Kennan, DEBRA Ireland Research Manager, will attend and we promise to update you afterwards!