For Emma, even sleep can be a torment, especially when the weather is warm.

The DEBRA Ireland Family Support Team have been able to act quickly, assessing our families’ needs to ensure they can be there for them.

“The recent heatwave has been torture. 80% of my body is covered in open wounds, so 80% of my body is covered in bandages. When people see my bandages, they just see one layer. What they don’t see is the four layers underneath that.” – Emma, living with dystrophic EB.

“I’m in a lot of pain right now. The heat has meant every day we have had to burst at least 10 blisters. If I need to turn during the night because of pain, I try to sit up. Then I use my arms to move my entire body and lift myself off the bed and into a new position. All this to avoid causing any rubbing and worse wounds.”

For Emma, even sleep can be a torment, especially when the weather is warm. Sleeping means long periods in the same position, putting pressure on particular areas which could cause chronic wounds. Even in the mildest temperatures, sleeping while covered in bandages is hard. But when the weather is warm, a hot sleepless night can result in more painful wounds.

But the DEBRA Ireland Family Support Team have been able to act quickly, assessing our families’ needs to ensure they react to a situation like this in providing specialised cooling units particularly for families that require the use of dressings.

For many, a specialist air-cooling unit has made all the difference, keeping their extensive bandages cool so they can sleep without scratching and discomfort. Something that might seem small – like a cooling fan – is a tremendous help to our families.

“This particular air con unit that DEBRA Ireland provided is hugely important for me. I have it on day and night. It’s the only thing that helps me sleep.”
*This specialist air con unit costs €984 and we have many families that still need our help. Your donation today means we can continue to be there for them.