This is the extraordinary story of 14 year old Jonathan Pitre from Canada who has EB.  

Jonathan Pitre (14) from Canada was born with EB (epidermolysis bullosa), a rare and painful genetic disease which causes his skin to blister at the slightest touch.  Even though he is in constant pain he has an incredible spirit and decided he wanted to bring awareness to this rare condition by making a video of what life is really like for a young boy with EB.  The video has now been viewed OVER 7 MILLION TIMES!

It can be hard to get notice for a condition as rare as EB but by opening his world to us, Jonathan is letting everyone know that even though EB is rare, it deserves just as much attention.

The video is really compelling viewing so please watch it right to the end and please SHARE it so we can continue his amazing work.

IF YOU WOULD LIKE TO HELP EB AWARENESS IN IRELAND

TEXT BUTTERFLY TO 50300 TO DONATE €4

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