Debra Ireland has had a dedicated resource to drive research into better treatments and ultimately a cure for people living with EB for over ten years. I joined the team at Debra Ireland as Research Manager just over a year ago to do just this. My role is very varied covering many areas of research including:
The seeds of DEBRA Ireland are sown… In 1988 a group of frustrated families gathered around a kitchen table. Their children were living with EB and there was no support. None of the maternity hospitals had heard of EB; let alone how to treat it. So, in the true pioneering spirit of our families, they formed DEBRA Ireland.
Our new community outreach nurse, Suzi O’Neill, is an extension of the current EB nursing team and is the link between the hospital and our families; allowing patients to get medical support and advice in the home.
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