SNEEM 50 MIL JFK CHALLENGE

It was on this day 50 years that JFK touched down in Dublin airport. As you all know to commemorate this, along with our own 25th birthday, some supporters recently took part in the Sneem JFK 50 Mile Challenge, Ring Of Kerry, Ireland.  Read what Mairead and Gerard O’Donoghue had to say about it here.

Read More
Dr. Anil S. Jina presenting at the DEBRA Ireland family day and some of the families enjoying the butterfly garden.

Shire, the global specialty biopharmaceutical company, recently announced its acquisition of Lotus Tissue Repair and their recombinant collagen VII protein replacement therapy which is in development for the treatment of DEB. Following this recent announcement, Dr. Anil S. Jina, Vice President and Head of Global Medical Affairs at Shire, attended DEBRA Ireland’s family day on May 12th.

Read More