John Dart and Rainer Riedl of DEBRA International, who have published an article on the role of DEBRA as a partner in EB research.

As many of you will remember, the EB2012 conference, held in Spain late last year, provided a great opportunity to assess the current state of play in EB research. A report on that conference has now been published in the Journal of Investigative Dermatology and beautifully summarises the information shared at the meeting.

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As many of you know, DEBRA Ireland along with our colleagues in DEBRA International have focused, for many years, on funding and supporting EB research. But what do the researchers think of our efforts?

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Health Entitlements

For some time now we’ve been taking steps to help families living with EB who experience difficulties with the medical card. We are delighted to say we have had a major breakthrough and managed to secure a smoother path through the medical card processes.

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DEBRA Ireland researcher, Dr. Wenxin Wang, was recently in the limelight, thanks to a very high profile scientific publication in one of the scientfic ‘Nature’ journals. The Nature journals are the stuff of dreams for all scientists across the world and Wenxin was thrilled to have his work feature in one of them.

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