Our EB community outreach nurse, Suzi O’Neill, is an extension of the current EB nursing team and is the link between the hospital and our families; allowing patients to get medical support and advice in the home.

Suzi works as part of the Dermatology Team in CHI Crumlin along with her nursing colleagues Annmarie Ormond and Sharon Keogh.  Traditionally Suzi would have been community based, linking in with families at home. But since Covid-19 she has been more hospital based linking in through email and phone.

Suzi and the team are still providing support to our EB families through the hospital. We would encourage families to continue to contact them if you need to.  We are thinking of you all during this stressful time and look forward to seeing you all in the future.