With the help of Senator Colm Burke, we recently obtained a meeting with Patrick Burke, the director of the HSE division that deals with medical cards and other health entitlements. We informed Mr. Burke and his senior staff, of the difficulties experienced by families living with EB, in accessing their entitlements, and of the stress and workload that it creates for them. Mr. Burke was genuinely concerned to hear of the challenges and was able to reassure us of the many positive steps being taken to improve the medical card processes. We remain in contact with his office to ensure that those assessing medical card applications recognise EB as a serious and lifelong condition.