Guiding the guideline developers
DEBRA Ireland is supporting the work of DEBRA International by playing a leading role the development of clinical practice guidelines for EB. The guidelines provide information on the best approach to EB medical care for clinicians and patients worldwide.
Developing these guides to clinical care is helped by understanding how the very best guidelines medicine has to offer are developed. To this end we recently organised for those developing EB guidelines to attend a course to learn about just that. EB guideline developers (and potential developers) from the areas of nutrition, wound care and hand therapy, together with a couple of us from DEBRA, attended and came away inspired. Thank-you to all the experts in SIGN, Glasgow for being so supportive and kindly granting our wish for a course on the topic. A huge thank-you also, to the wonderful EB experts who gave their time to attend.