It’s crazy to think that people with EB might not be included on a list of conditions eligible for a medical card. None-the-less, the Government asked for submissions to help them decide which conditions are most in need and so we made a submission.
It details why people with EB need a medical card, outlining the complex medical requirements of EB and the need for families living with EB to have the associated costs of care covered. We also took the opportunity to raise issues around the amount of bureaucracy and stress associated with the medical card. Read the full submission here: