On Sunday 20th July DEBRA UK featured on BBC Lifeline. Sam Smith presented an appeal on behalf of DEBRA, the UK’s leading charity supporting people who live with EB.

Sam is one of around 5000 people in the UK with epidermolysis bullosa (EB), which means her skin is so fragile, the slightest touch or rub can result in painful blisters and open wounds.

The film features Jenna, who describes the value of having a DEBRA community support worker who helped her learn to care for her baby son Freddie and change his dressings, even when he is in pain.