Seamus shares his story of living with EB.
Read MoreDEBRA Ireland News and Stories
DEBRA Ireland Newsletter Summer Edition
Did you receive your latest issue of DEBRA Ireland’s Summer Newsletter? It is not one to miss!
Read MoreEuropean Conference on Rare Diseases and Orphan Products (ECRD) 2022
The 11th European Conference on Rare Diseases and Orphan Products (ECRD) took place fully online from 27 June to 1 July 2022. Members of the DEBRA Ireland Research team were delighted to attend.
Read MoreUniversity of Limerick PPI Summer School
The 7th annual Public & Patient Involvement Summer School took place from Thursday 23rd until Friday 24th June 2022, and was hosted by the University of Limerick. Members of the DEBRA Ireland Research team were delighted to attend.
Read MoreEuropean Commission approves Amryt Pharma’s Filsuvez for use in the EU
Amryt Pharma’s Filsuvez®, the first EB-specific treatment designed to heal partial thickness wounds in Dystrophic and Junctional EB in patients 6 months and older, has been approved by the European Commission (EC) for use in the EU. This means that the treatment has been declared safe for use in humans within the EU.
Read More
