Krystal Biotech has developed a gene therapy, called VYJUVEK, which is designed for use in patients with Dystrophic EB (DEB) to heal chronic wounds.
Read More
This blog post was co-authored by Alison Hyland.
Researchers in the University Hospital of Cologne, Germany, are currently trying to gain a better understanding of the complications of wound healing in those who have Recessive Dystrophic EB.
Read More
Welcome to our Autumn Newsletter. We are delighted to share with you all the exciting things happening in DEBRA Ireland and stories from our amazing patients living with EB.
You will learn about the agony the warm summer nights bring to our friends living with EB. Emma shares her pain in trying to sleep during the night with the heat, and what a difference our Family Support Team has made to this through your support.
The brave and inspiring Claudia opens up to us to share her mental health struggles to help others.
Read about some exciting research projects now underway because of the amazing kindness of our donors this year.
We also welcome our newest member of the Family Support team, Kate, who shares her thoughts and experiences working in DEBRA Ireland.
And learn how you can truly change the lives of people living with EB by leaving a lasting memory and gift in your Will.
Hope you enjoy reading and a big thank you again for being part of the DEBRA Ireland family.
