In February 2021, DEBRA Ireland joined the #Vaccine for Carers campaign. This campaign was fronted by our Parent Ambassador Liz Collins.

Since then there has been numerous statements recognising family carers as the backbone of community supports and services in Ireland. However there is yet to be a commitment to prioritise the vaccination of carers as has been replicated in other countries. Just yesterday (31st March), the Dáil debated the motion to care for carers (Link to the motion). There was cross party commitment to this motion, which is a very welcome update. However given the Government’s and NIAC’s decision on 30th March to roll out an age based vaccine programme (https://www.rte.ie/news/coronavirus/2021/0330/1207045-coronavirus-vaccination-list/), family carers have been given hope in one hand whilst it’s been taken away swiftly with the other. Their main question is who will care for my loved one if I get COVID as what happened Liz Collins last year. Read about how worrying this time was for her and her family here- https://www.independent.ie/breaking-news/irish-news/mum-and-carer-of-teenager-with-rare-skin-condition-issues-plea-over-vaccine-40103019.html

DEBRA continues to advocate for family carers to not just be spoken about as a key member of society but to be treated as such.

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Hours: Full-time / part-time 4 days

Reporting to: Research Manager

Location: 8 Clanwilliam Terrace, Grand Canal Quay, Dublin 2 (* Note: in light of the COVID-19 pandemic and restrictions, this role will be full-time home-based while public health restrictions remain in place)

DEBRA Ireland RESEARCH OFFICER job description final

Applications:

Interested candidates should submit a copy of their CV and cover letter to [email protected]

Closing date for applications is 5pm on Friday 9th April 2021.

For informal queries please contact [email protected]

DEBRA Ireland is an equal opportunities employer.

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A new spray treating internal blistering, mouth ulcerations and oral scarring is being developed by researchers in the University of Birmingham. Researchers in the University’s Healthcare Technologies Institute and the Institute of Inflammation and Ageing, are working alongside experts in dermatology and dentistry to formulate an oral spray designed for patients with Epidermolysis Bullosa (EB). The research project, funded by DEBRA Ireland and DEBRA UK, aims to alleviate damage to oral linings of the mouth caused by EB.

Blistering to the inside of the mouth, common among those living with EB, makes tasks such as eating, drinking and brushing of the teeth very painful and extremely difficult. Scarring as a result of such blistering, can affect the development of muscles and other tissues.

Over the next two years, the research team, led by Professor Liam Grover, will work alongside clinicians and patient groups on the design of the spray to ensure precise delivery to oral linings of the mouth. The aim of the research is to assess the feasibility of such preparations to be sprayed and to deliver the compound actively to the mouth lining, prior to proceeding to clinical studies.

Professors Adrian Heagerty and Liam Grover explain the project here:

For more detailed information about the project, please visit our website: https://debraireland.org/research/debra-irelands-involvement-in-research/research-studies-treatments-and-cures/a-novel-spray-to-treat-oral-scarring-in-eb/

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