• EB = Epidermolysis Bullosa. A severe rare genetic skin blistering condition.
• EB = Extraordinary Butterflies. EB skin is as fragile as the wings of a butterfly.
• EB = Endless Blistering. Even gentle skin contact causes devastating wounds.
• EB = Excruciating Bandaging. When dressings stick, the skin often comes away too.
• EB = Exhausting Battle. There is no cure and a high risk of developing aggressive skin cancer.
• EB = the worst disease you’ve never heard of.

Jimmy, DEBRA Chief Executive

Fiona, DEBRA Head of Advocacy

Amy, DEBRA Donor Care Executive

Deirdre, DEBRA Family Support Manager

Susan, Community & Groups Manager

Suzanne, DEBRA Operations & Policy Officer

Kim, DEBRA CRM & Accounts Officer