Menu
MENUMENU
  • What is EB?
  • Home
  • About Us
    • About DEBRA Ireland
    • Governance and Management
    • Our impact reports and financial accounts
    • Our Promise
    • What is EB?
    • Our Ambassadors
    • Celebrity Champions
    • DEBRA International
  • What We Do
    • Family Support
      • Young people with EB
      • EB Cards
      • Real Life Stories
      • The Butterfly Garden
      • Meet the Team
      • Family Support Services
      • Health Entitlements
      • The Hospital Referral Process
    • Research
      • EB Research in the News
      • DEBRA Ireland’s Involvement in Research
      • Patient and Public Involvement
      • EB Patient Registries
      • Clinical Research
      • DEBRA Ireland Research Committee
    • Awareness & Advocacy
      • Working together for rare diseases
      • Improving health entitlements
      • Improving care
      • Progressing the development of therapies
      • Our Future
  • Get Involved
    • Gifts in Wills
      • Gifts in Wills
    • Fundraising
      • Facebook fundraising
      • Other Ways to Donate
      • Corporate Fundraising
      • Schools and Colleges
      • Volunteer
    • Events
      • StepTember
      • Kerry Challenge 2023
    • EB Awareness Week 2022
  • Donate
    • Late Late Show
  • News
Donate

The Butterfly Skin Charity

Debra Ireland - The Butterfly Skin Charity

Facebook Twitter Donate Get Involved Search
MENUMENU
  • What is EB?
  • Home
  • About Us
    • About DEBRA Ireland
    • Governance and Management
    • Our impact reports and financial accounts
    • Our Promise
    • What is EB?
    • Our Ambassadors
    • Celebrity Champions
    • DEBRA International
  • What We Do
    • Family Support
      • Young people with EB
      • EB Cards
      • Real Life Stories
      • The Butterfly Garden
      • Meet the Team
      • Family Support Services
      • Health Entitlements
      • The Hospital Referral Process
    • Research
      • EB Research in the News
      • DEBRA Ireland’s Involvement in Research
      • Patient and Public Involvement
      • EB Patient Registries
      • Clinical Research
      • DEBRA Ireland Research Committee
    • Awareness & Advocacy
      • Working together for rare diseases
      • Improving health entitlements
      • Improving care
      • Progressing the development of therapies
      • Our Future
  • Get Involved
    • Gifts in Wills
      • Gifts in Wills
    • Fundraising
      • Facebook fundraising
      • Other Ways to Donate
      • Corporate Fundraising
      • Schools and Colleges
      • Volunteer
    • Events
      • StepTember
      • Kerry Challenge 2023
    • EB Awareness Week 2022
  • Donate
    • Late Late Show
  • News
  • Home
  • >
  • Events >
  • Christmas
Christmas
18 December 2019 - 31 January 2020

Support families living with EB this Christmas by making a donation.

Thanks to your help we are closing the gap between what people living with EB need and what they get. We can now dare to dream that within ten years you will be celebrating with us when we fully close this gap. By 2029 people living with EB will have the highest quality of life possible with the best medical and community care services on offer. They will also have hope as new treatments become a reality. Parents will no longer have to change the bandages on their child for three hours every day.

It is because of the generosity of supporters like you:

  • Our Family Support Service is expanding and there is increased collaboration with other charities and other DEBRA charities to improve our services and support.
  • The first Irish EB clinical trial is currently happening in Ireland. This is a great opportunity for our patients.
  • Families are beginning to get home care packages thanks to our lobbying work and partnership with the clinical team in Our Lady’s Children’s Hospital Crumlin.
  • Our partnership with a number of organisations resulted in major funding for a ground breaking research project in The Charles Institute of Dermatology, UCD.
  • We have committed to funding a new research project around wound healing with DEBRA UK.
  • We are playing the main role in the development of an Irish and international patient registry. This will attract more researchers and pharmaceutical companies.

In 2020, we plan and need, to do so much more for those living with EB.  If you can make a Christmas donation, it would mean so much to our families.

Wishing you and yours a healthy and happy Christmas,

Thank You!

Manage Cookie Consent
We use cookies to optimize our website and our service.
Functional Always active
The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network.
Preferences
The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user.
Statistics
The technical storage or access that is used exclusively for statistical purposes. The technical storage or access that is used exclusively for anonymous statistical purposes. Without a subpoena, voluntary compliance on the part of your Internet Service Provider, or additional records from a third party, information stored or retrieved for this purpose alone cannot usually be used to identify you.
Marketing
The technical storage or access is required to create user profiles to send advertising, or to track the user on a website or across several websites for similar marketing purposes.
Manage options Manage services Manage vendors Read more about these purposes
Preferences
{title} {title} {title}
Follow Us
  • Twitter
  • Facebook
  • Linked In
  • YouTube
Find out about our latest news,
events, campaigns & more
Sign Up

Contact Us

DEBRA Ireland,
Butterfly Cottage
8 Clanwilliam Terrace
Grand Canal Quay
Dublin 2

Tel: +353-1-412-6924
E: [email protected]
Registered charity number: 8703
Charity regulator number: 20021726

Tweets by @debraireland
YouTube