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MENUMENU
  • What is EB?
  • Home
  • About Us
    • About DEBRA Ireland
    • Governance and Management
    • Our Promise
    • What is EB?
    • Our Ambassadors
    • Celebrity Champions
    • DEBRA International
  • What We Do
    • Family Support
      • Young people with EB
      • EB Cards
      • Real Life Stories
      • The Butterfly Garden
      • Meet the Team
      • Family Support Services
      • Health Entitlements
      • The Hospital Referral Process
    • Research
      • EB Research in the News
      • DEBRA Ireland’s Involvement in Research
      • Patient and Public Involvement
      • EB Patient Registries
      • Clinical Research
      • DEBRA Ireland Research Committee
    • Awareness & Advocacy
      • Working together for rare diseases
      • Improving health entitlements
      • Improving care
      • Progressing the development of therapies
      • Our Future
  • Get Involved
    • Fundraising
      • Facebook fundraising
      • Other Ways to Donate
      • Corporate Fundraising
      • Charity Shop
      • Schools and Colleges
      • Raffle
      • Volunteer
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      • Kerry Challenge 2021
      • VHI Mini Marathon 2020
      • 2022 Arctic Challenge
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  • 2022 Arctic Challenge >
2022 Arctic Challenge
02 March 2022 - 08 March 2022
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The Arctic challenge will sell out – so sign up now to secure your place,

“An amazing challenge that will both empower and inspire you . Don’t procrastinate…. sign up now”

Our incredible expedition is a once in a lifetime opportunity to tick some major challenges off your bucket list. Our group will consist of a small group of fellow adventurers but more importantly you will be making a huge difference in the lives of the bravest people you might ever meet – our families battling EB.

The total fundraising target for this trip is €5,500 (which includes flights, accommodation, all training, food and equipment).

Of the €5,500 fundraising total there are €2,000 in direct costs like flights, food and equipment, with the remaining €3,500 being used to keep DEBRA Ireland’s vital services going. That means we can provide both practical and clinical expertise at home; we can lobby to ensure all families get proper care packages and we can invest in local and international research to ensure better treatments, and eventually a cure for this devastating disease.

Sign Up

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DEBRA Ireland,
Butterfly Cottage
8 Clanwilliam Terrace
Grand Canal Quay
Dublin 2

Tel: +353-1-412-6924
E: [email protected]
Registered charity number: 8703
Charity regulator number: 20021726

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