The Butterfly Skin Charity

The Arctic challenge will sell out – so sign up now to secure your place,

“An amazing challenge that will both empower and inspire you . Don’t procrastinate…. sign up now”

Our incredible expedition is a once in a lifetime opportunity to tick some major challenges off your bucket list. Our group will consist of a small group of fellow adventurers but more importantly you will be making a huge difference in the lives of the bravest people you might ever meet – our families battling EB.

The total fundraising target for this trip is €5,500 (which includes flights, accommodation, all training, food and equipment).

Of the €5,500 fundraising total there are €2,000 in direct costs like flights, food and equipment, with the remaining €3,500 being used to keep DEBRA Ireland’s vital services going. That means we can provide both practical and clinical expertise at home; we can lobby to ensure all families get proper care packages and we can invest in local and international research to ensure better treatments, and eventually a cure for this devastating disease.