COVID-19 – EB Clinic Information

Updated 09/04/2020

Disclaimer: Information and advice regarding Coronavirus (COVID-19) is changing regularly. We aim to keep the DEBRA website up to date as much as possible; however, you should always consult and follow the advice given by the Government and other regulatory authorities.

We are in constant communication with the teams at both Children’s Health Ireland, (CHI) Crumlin and St James’ Hospital (SJH). Both hospitals will continue running the EB services; however, Coronavirus (COVID-19) is impacting the way these teams are able to work. We have gathered some answers for patients with questions regarding their care during the COVID-19 pandemic.

  • This is a very busy time for all teams, and healthcare professionals are being moved to different parts of the hospitals, despite this cover of the EB services will always be maintained.
  • As per Department of Health guidelines and hospital policy all elective procedures have been postponed. Necessary procedures will go ahead.
  • Patients who are unfortunately sick enough (COVID or Non COVID related) will be admitted to hospital, however as hospitals are a high risk environment all those living with EB are urged to follow the Governments advice in an effort to stop the spread of COVID-19.
  • All agencies and carers delivering healthcare in patient’s homes (bandage & wound care) will have developed policies regarding this service delivery and contingency plans relating to same. If you have concerns regarding this service delivery please do get in contact with your service providers.
  • If a patient with EB gets COVID-19 they should follow the guidelines for the general public. Notify their GP and isolate. Admission will be determined by GP’s assessment and if symptoms deteriorate.
  • The swab test may at most cause a blister at the swab site in the back of the throat.

If you have any concerns or further questions please get in touch with your medical team. This is an unpredictable and worrying time for many people and they are happy to answer your questions.

UPDATES

COVID-19 INFORMATION BOOKLET

April 6th 2020

DEBRA International have produced an information booklet on COVID-19 for the EB Community…. Read More

COVID-19 PANDEMIC UNEMPLOYMENT PAYMENT

March 23rd 2020

The Department of Employment Affairs and Social Protection (DEASP) has announced a new COVID-19 Pandemic Unemployment Payment…. Read More

COVID-19 STATEMENT

March 11th 2020

Coronavirus is a respiratory disease which seems to start with a fever, followed by a dry cough… Read More

RESOURCES/USEFUL CONTACTS

There is a lot of information about Coronavirus (COVID-19), make sure you only follow advice from reliable sources and check regularly for updates:

 

Some useful contacts