The Butterfly Skin Charity

The continuous stream of information coming from various different channels can be overwhelming. The vast majority of the population are worried about how to look after their families well-being at this tricky time. Given the added anxiety and worry that already exists when living with EB we have put together some information you may find useful along with a summary of the general advice provided by the HSE, local and national Government and links to additional information sources.

Note: DEBRA Ireland are not responsible for the content on third party websites, we have collated the guidance and links that are, to the best of our knowledge, reputable sources of information and are updated regularly. Please get in touch if there are any issues with the information on these pages.