Ghouls, goblins, skeletons and corpses are alive in well in Killiney! Visit the scariest house in Ireland this Halloween.
Read MoreHalloween House of Horrors in aid of DEBRA Ireland
Articles by Sinead Deasy
A poem about life with EB
This beautiful poem was written and shared by a supporter. If you have a poem or song you would like to share, we would love to hear from you. Just email to [email protected]
Read MoreNational Giving Week
DEBRA Ireland are very excited to be part of National Giving Week, taking place from November the 11th to 17th. Philanthropy Ireland are have created the 1% Difference Campaign and their goal is raise giving levels across Ireland.
Read MoreSuccess for DEBRA at the 2013 Irish Healthcare Awards
It was a great night for EB and DEBRA at the Irish Medical Times Irish Healthcare Awards last night. Dr. Rosemary Joan Gowran, who has been working closely with DEBRA and the Crumlin and James’s medical teams, won the ‘Clinical Research Associate of the Year’ award, for her work on EB.
Read MoreLiz and Claudia Scanlon feature in The Independent Health and Living Supplement
Liz and Claudia were recently interviewed by Ailin Quinlan for the Irish Independents Health and Living Supplement. Well done ladies, the article gives such amazing and honest insight into living with EB. Click here to read the full article.
Read MoreBudget 2014 and how it will impact on families living with EB
The Cogan family recently spoke to Eilish O’Regan from the Independent about the impact of Budget 2014 on their family. The recent decision to offer free childcare to children under 5 will not benefit them and their 8 year old daughter Katelynn. Click here to read the full story.
Read More‘Boy Whose Skin Fell Off’
Last month saw the 10th anniversary of the death of Jonny Kennedy. For those of you who have seen the documentary ‘The Boy Whose Skin Fell Off,’ we don’t have to remind you who Jonny was.
Read MoreMeet DEBRA Australia
Ever wondered how DEBRA’s all over the world differ from DEBRA Ireland? We recently met up with Michael Fitzpatrick of DEBRA Australia to ask him a few questions.
Read MoreInternational EB awareness week 2013
EB Awareness Week 2013 will take place from the 25th October to the 31st of October. Since its launch in 2007, the campaign has reached individuals and organisations in 76 countries around the world.
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