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Articles by Alison Hyland

How Clinical Trials Work – an EB Expert Perspective

Written by Alison Hyland on August 24th 2022

Clinical trials are an essential part in the development process of new drugs and treatments.

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Categories: News, Research

The Importance of Public and Patient Involvement (PPI) in Research

Written by Alison Hyland on August 15th 2022

In research Patient and Public Involvement is defined as “research carried out with or by members of the public, rather than about or for them”.

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Categories: News, Research

European Conference on Rare Diseases and Orphan Products (ECRD) 2022

Written by Alison Hyland on July 13th 2022

The 11th European Conference on Rare Diseases and Orphan Products (ECRD) took place fully online from 27 June to 1 July 2022. Members of the DEBRA Ireland Research team were delighted to attend.

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Categories: News, Research

University of Limerick PPI Summer School

Written by Alison Hyland on July 11th 2022

The 7th annual Public & Patient Involvement Summer School took place from Thursday 23rd until Friday 24th June 2022, and was hosted by the University of Limerick. Members of the DEBRA Ireland Research team were delighted to attend.

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Categories: News, Research

Promising results from two new EB treatments in development

Written by Alison Hyland on June 2nd 2022

We are delighted to share some positive news related to two new EB treatments which are currently being developed.

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Categories: News, Research

Recent Posts

  • 2023 Spring Appeal – Family Support Team
  • We launched our EB Expert Panel to help shape our support and research priorities
  • Claudia Scanlon and Johnny Sexton join Ryan Tubridy on emotional Late Late Show interview
  • Newsletter Spring Edition
  • People living with EB need mental health support

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