It’s crazy to think that people with EB might not be included on a list of conditions eligible for a medical card. None-the-less, the Government asked for submissions to help them decide which conditions are most in need and so we made a submission.
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Jimmy and Avril recently traveled to the annual DEBRA International Congress meeting, held this year in Rome. There, they had the pleasure of meeting the lovely Dorothee Rahn (Doro). Doro is a journalist and shared this insightful article on her experiences of the meeting with us…..
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For some time now we’ve been taking steps to help families living with EB who experience difficulties with the medical card. We are delighted to say we have had a major breakthrough and managed to secure a smoother path through the medical card processes.
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DEBRA Ireland researcher, Dr. Wenxin Wang, was recently in the limelight, thanks to a very high profile scientific publication in one of the scientfic ‘Nature’ journals. The Nature journals are the stuff of dreams for all scientists across the world and Wenxin was thrilled to have his work feature in one of them.
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Dr. Rosie Gowran and her Occupational Therapy Masters students recently presented to us on the outcomes of their study on support services for EB.
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