We are delighted to report that a DEBRA Ireland supported study, taking an in-depth look at EB support services in Ireland, has been published.  

To our sadness, Ita Saul, EB dietician in Our Lady’s Hospital, takes her leave to enjoy a well-deserved retirement.

Having been its champion since the beginning, Dr. Rosemarie Watson recently retired from the adult EB service in St. James’s Hospital.

After many years of tireless advocacy work, of which DEBRA have been a part of, a National Rare Disease Office was launched by Health Minister Leo Varadkar in early June.

DEBRA Ireland is supporting the work of DEBRA International by playing a leading role the development of clinical practice guidelines for EB.