For some time now we’ve been taking steps to help families living with EB who experience difficulties with the medical card. We are delighted to say we have had a major breakthrough and managed to secure a smoother path through the medical card processes.
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DEBRA Ireland researcher, Dr. Wenxin Wang, was recently in the limelight, thanks to a very high profile scientific publication in one of the scientfic ‘Nature’ journals. The Nature journals are the stuff of dreams for all scientists across the world and Wenxin was thrilled to have his work feature in one of them.
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Dr. Rosie Gowran and her Occupational Therapy Masters students recently presented to us on the outcomes of their study on support services for EB.
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Some may argue that social media is not the most social of activities, sitting behind a computer screen and engaging with faceless usernames. Whilst there may be an argument there, communities like the EB one, can really benefit from the connections that social media can facilitate.
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