Check out our latest impact reports and find out how we’re helping families living with EB across Ireland. Our financial reports will give you details of our activities throughout the preceding year.
Overview of the year
When we wrote our report last year, we were still facing the unknowns and uncertainties of the COVID-19 pandemic. Although the pandemic has not gone away, the situation is significantly improved and as of early 2022, restrictions have been lifted. As we now settle into “new-normal” life post COVID, we would like to reflect on this past eventful and, thankfully, successful year for DEBRA Ireland.
The highlights of the year included
- The announcement that the EB Outreach Nurse in CHI Crumlin is now a permanent position. We have fought long and hard for this and this development was the product of years of hard work by DEBRA Ireland and the clinical team in CHI Crumlin.
- The approval of a new EB Clinical lead for the adult service in St James Hospital.
- The success of our goal to increase the number of Irish researchers in the EB space through the HRCI HRB Joint Funding Scheme.
- The continued and ongoing efforts to develop Ireland’s first EB Registry.
- Increased investment in research, with DEBRA Ireland now funding seven projects.
- Johnny Sexton’s appearance, alongside Claudia, on the Late Late Show, raising over €400,000.
Past impact reports
Our strategy 2022-2025
This document outlines how we will achieve the greatest possible impact for people with EB and their families between 2022 and 2025.
It was created with extensive input from patients, families, carers, medical professionals, researchers and donors, and we would like to thank everyone who shared insights and ideas with us.
It outlines seven closely connected objectives, and we’ll regularly review and adapt it to make sure we’re making the biggest difference to people’s lives.
We want to ensure that all our activity has an impact, namely significant change to the lives of people living with EB.
Our strategic objectives
The seven objectives reflect the three areas where progress must keep growing – family services, advocacy and research – and the four areas of our organisation we must strengthen to achieve our ambitions – support for our people, fundraising, communications and impact measurement. By working in all of the ways described here, we will keep improving life for everyone living with EB in Ireland – between now and 2025, and long into the future.